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Amy Surgery UPDATE.....

Posted by saucy-suwi on February 19, 2010 at 10:55 AM

Cataract removal and replacement lens.

Went in as arranged on Wednesday morning to

Great Ormond Street Hospital.

http://www.gosh.org

First we went to the Dinosaur Ward an day ward for the children awaiting surgery. We arrived at 9.30 but surgery was not until 3.30. After a couple of tests Amy was free to play in the play area. This had EVERY facility a child could possibly need. (Well, GOSH is one of the best children's hospitals in the world) In the early afternoon a group of people arrived including a clown and

Popstar to Opera Star

http://www.itv.com/entertainment/popstartooperastar/

mentor

http://www.rolandovillazon.com

Rolando Villazon


Like all men Amy took a shin to him and the took a TON of pictures (not sure what it was all for though?) He thought Amy was wonderful and he chatted to Amy and I for a while which was good as it relived the waiting a little! LOL

Just before Amy had to go to theatre she changed into her gown and had to have a load of eye drops that stung her eyes! This was distressing but had to be done!(cry) They said she would be about an hour and half so after going up the the ward she would be returning to mum and I went for some breakfast/ lunch/ dinner (well, Amy could not eat so we didn't either).

Then we returned to the ward to wait....and wait.... and wait! At 5.30 she had still not come back and panic set in! Mum went to ask a nurse what was happening and we waited for the nurse to come back with news.... Just as mum was about to tell me to stay calm and not to start with the dancing legs... off they went! When I'm frightened I shake.... well my legs go! LOL Anyway the nurse returned and said we could go see Amy.... mum explained about the shaking and the nurse asked if I needed to sit down or a drink? "NO!!!! just my daughter!" as I shot of down the corridor! LOL

Amy was still asleep! That had been the delay the little monkey would not wake up but she was fine! Just a patch over her eye. She was then taken back to the ward and slept for another couple of hours.

When she did wake up she wanted to know where my mum was and I explained she had gone home on the train and Amy would have to put up with just ME! Fortunately she was OK with this! Then she wanted the patch removed as it was hurting and it was hard making her understand she had to keep it on until morning! Then she had a bad nose bleed (I think through the tubes and her little nose)

After that it was a intermittent... I'm hungry! and it hurts! So three slices of toast, two drinks, a wee and a walk later it was 11.30 and I was still trying to get Amy to go to sleep!!!! In the end I laid in the bed next to her and she slept fitfully!!!! Me? I slept not at all!

In the morning I made us some tea and toast and we went down to clinic to see the very handsome Dr Moore who has to be one of the nicest doctors I have ever met! He spent a long time with Amy and was very pleased with how things had gone. I had already been told Amy had to have drops every hour and they were VERY important! So on returning to the ward I asked about the drops? NO DROPS HAD BEEN ORDERED????? BLEEEEEEEEEEP!!!!! Well our car was booked for 1.00 to take us home and at 1.30 we were still awaiting the bloody drops! To say I was cross is an UNDERSTATEMENT! The Dr said over and over how important these antibiotic's are and we miss the first FIVE doses????? Anyway with traffic jams etc we got home a little after 3.30! Sophie was out the door before the car had even drawn up outside she had missed Amy BIG time!

So now we are home and I went to bed same time as the girls about 8 o'clock! I thought Amy would be a pain in the night be she only had me up once and is starting to get used to the drops,or it could be the sweet she gets with each drop???? I just hope they are going in OK?

So it's back to the hospital on Monday for a check up, fingers crossed all will still be OK!

Keeping Amy still?..... Not a chance! All I can do is TRY and stop her from [i]bouncing[/i] around!

Her eyesight?............. MEGA good news. The doctors said her 'good' eye would need patching so her new eye/brain could start working this could take weeks/ months soooooooooooooooooo

AMY CAN SEE ALREADY!

At the beginning I was told there was nothing anyone could do and she would NEVER see much.... her sight got worse over the years and this is why we went to GOSH just hoping that they could help, even in just a small way!

I don't think the doctors knew if this surgery would help and there is still a chance the lens might not graft properly or her eye could get an infection and she could lose it!!!! (That's why the antibiotic drops are so important.... and why I went nuts when they messed up on them)

Anyway so far so good!











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4 Comments

Reply colourcloud
04:38 PM on February 20, 2010 
I loved the way you told the story of Amy's surgery. I felt as if I was in the rooms with you! I'm really happy she's doing well, and so are you, mom! Please give her a big hug, and one to Sophie too
Reply saucy-suwi
05:30 PM on February 20, 2010 
colourcloud says...
I loved the way you told the story of Amy's surgery. I felt as if I was in the rooms with you! I'm really happy she's doing well, and so are you, mom! Please give her a big hug, and one to Sophie too

Thank you Mary! She is still doing well, although not so pleased with the hourly eye drops!!!! LOL
Reply Valli
08:20 AM on February 22, 2010 
It's a relief to hear all went so well. Good idea giving her a sweetie with the drops. Great incentive. It is still working? Praying for complete success of the op for Amy.
Reply Saucy Suwi
01:59 PM on February 22, 2010 
Valli says...
It's a relief to hear all went so well. Good idea giving her a sweetie with the drops. Great incentive. It is still working? Praying for complete success of the op for Amy.

Hi Valli, yes the sweets are still working and now we only need to do the drops every TWO hours! After Wednesday we will be down to FOUR times a day! That plus some other drops she needs twice a day and a gel we need to put in her eye before bed.... So to start with it was at least 16 times a day!!!!! Now it's down to 10 times a day!!!!! Still a lot of Maltesers! LOL